Palliative Care in the Conditions of New Social Challenges: Problems and Prospects

DOI: 10.46340/eppd.2024.11.1.6

Valentyna Kostina, Doctor of Pedagogical Sciences
H.S. Skovoroda Kharkiv National Pedagogical University, KHOGOKZ, Ukraine
Tetyana Rahozina
H.S. Skovoroda Kharkiv National Pedagogical University, The Kharkiv Regional Charity Fund «Social Assistance Service», Ukraine
Lesіa Smerechak, PhD in Pedagogy
Drohobych State Pedagogical University named after Ivan Franko, Ukraine

How to cite: Kostina, V., Rahozina, T., & Smerechak, L. (2024). Palliative Care in the Conditions of New Social Challenges: Problems and Prospects. Evropsky Politicky a Pravni Diskurz, 11, 1, 51-61. https://doi.org/10.46340/eppd.2024.11.1.6

 

Abstract

Russia’s armed aggression against Ukraine, which turned into a full-scale military conflict in February 2022, created serious problems for the entire system of social assistance in Ukraine in general and specialized services providing palliative care, in particular. Significant social problems arose when implementing a comprehensive approach to patient and family care under martial law.

This review aims to summarize the existing positive practices of providing palliative care in conditions of new social challenges and to highlight the main directions of social support in palliative care in conditions of martial law.

The publication provides an overview of modern scientific research and various practices of providing social support abroad, which are provided in the conditions of specialized medical institutions and social institutions that provide palliative care in the conditions of modern social challenges (the COVID-19 pandemic, conditions of social distancing, etc.). Prospective practices in the provision of palliative care using community resources have been identified. The domestic experience of providing social rehabilitation services is analyzed, and the main directions of social support services provided to clients within the social service of palliative care in the Kharkiv Regional Charitable Fund “Social Assistance Service” under martial law are given.

To identify problematic issues and improve the quality of palliative care social service provision, a survey of recipients of the relevant social service was conducted regarding the level of life satisfaction as an important prerequisite for the psychosocial state of clients and client satisfaction with the level of palliative care service provision as a promising way to improve further work with clients, focused on their needs. Data on the processing of the survey results using the methods of statistical evaluation of the central tendency of the sample and correlation analysis are given. Based on the analysis and generalization of the research results, the main ways to improve the social service of palliative care for the elderly in the conditions of martial law and promising directions of research are determined.

Keywords: palliative care, elderly people, palliative help, martial law, charity fund, social well-being, statistical evaluation, central tendency of the sample, correlation analysis.

 

References

Aoun, S.M., Richmond, R., Gunton, K. et al. (2022). The Compassionate Communities Connectors Model for End-of-Life Care: Implementation and Evaluation. Palliative Care and Social Practice, 16, 1-18. https://:doi:10.1177/26323524221139655

Bradley, N., Lloyd-Williams, M., Dowrick, C. (2018). Effectiveness of Palliative Care Interventions Offering Social Support to People with Life-Limiting Illness-A Systematic Review. Eur J Cancer Care, 27(3), e12837. https://doi:10.1111/ecc.12837

Danyliuk, K.V. (2018). Sutnisna kharakterystyka paliatyvnoi ta khospisnoi dopomohy i pryntsypy yii nadannia v Ukraini [Essential Characteristics of Palliative and Hospice Care and the Principles of its Provision in Ukraine]. Derzhavne upravlinnia: udoskonalennia ta rozvytok [Public Administration: Improvement and Development], 2. http://www.dy.nayka.com.ua/?op=1&z=1191 [in Ukrainian].

Government Portal (2022). Na period voiennoho stanu sproshcheno poriadok otrymannia sotsialnykh posluh statsionarnoho, paliatyvnoho ta dohliadu vdoma [During the Period of Martial Law, the Procedure for Obtaining Social Services for Inpatient, Palliative and Home Care is Simplified]. http://surl.li/nhzhv [in Ukrainian].

Hostinar, C.E. (2015). Recent Developments in the Study of Social Relationships, Stress Responses, and Physical Health. Current Opinion in Psychology, 5, 90-95. https://doi:10.1016/j.copsyc.2015.05.004

International Organization for Migration (IOM) (2023). Ukraine – Area Baseline Assessment (Raion level) – Round 28 (September 2023). https://dtm.iom.int/reports/ukraine-area-baseline-assessment-raion-level-round-28-september-2023?close=true

Kharkiv Regional Charitable Fund “Social Assistance Service” (2023). Paliatyvni zakhody: sotsialna ta medychna dopomoha liudiam, yaki potrebuiut mobilnoi paliatyvnoi dopomohy / Stala systema Domashnoi opiky v Ukraini [Palliative Measures: Social and Medical Assistance to People who Need Mobile Palliative Care / Stable System of Home Care in Ukraine]. https://ssa.kharkov.ua/projects/paliatyvni-zahody-soczialna-ta-medychna-dopomoga-lyudyam-yaki-potrebuyut-mobilnoyi-paliatyvnoyi-dopomogy-stala-systema-domashnoyi-opiky-v-ukrayini/ [in Ukrainian].

Kostina, V. (2023a). Resource Provision in the Field of Social Assistance in the Conditions of New Social Risks. Journal of Geography, Politics and Society, 13(2), 38-45. https://doi.org/10.26881/jpgs.2023.2.04

Kostina, V.V. (2023b). Zahalni zasady sotsialnoi dopomohy liudiam litnoho ta pokhyloho viku v umovakh suchasnykh sotsialnykh vyklykiv [General Principles of Social Assistance to Elderly People in the Conditions of Modern Social Challenges]. Soroky, O., Leshchuk, H. (ed). Sotsialna robota i sotsialna osvita v umovakh sohodennia: problemy ta perspektyvy rozvytku [Social Work and Social Education in Today’s Conditions: Problems and Prospects for Development]. Ternopil: Osadtsa Yu.V., 36-73. http://dspace.tnpu.edu.ua/bitstream/123456789/30884/1/Soroka_Leschyk_Sots_rob.pdf [in Ukrainian].

Kyiv Official Portal (2023). Kvalifikovanyi personal nadaie kompleks profesiinykh posluh iz paliatyvnoho dohliadu u stolytsi v umovakh voiennoho stanu [Qualified Personnel Provide a Complex of Professional Palliative Care Services in the Capital Under Martial Law]. https://kyivcity.gov.ua/news/kvalifikovaniy_personal_nadaye_kompleks_profesiynikh_poslug_iz_paliativnogo_doglyadu_u_stolitsi_v_umovakh_voyennogo_stanu/ [in Ukrainian].

Melnyk, Yu.B., Stadnik, A.V., Pypenko I.S. et al. (2021). Impact of COVID-19 on the Social and Psychological State of Athletes. The Journal of Sports Medicine and Physical Fitness
https://doi:10.23736/S0022-4707.21.12401-6

O’Brien, H., O’Brien, T. (2022). Palliation in a Pandemic: the Human Cost of Achieving the Greater Good. Palliative Care and Social Practice, 16. https://doi:10.1177/26323524221141720

Peeler, A., Doran, A., Winter-Dean, L., et al. (2023). Public Health Palliative Care Interventions That Enable Communities to Support People Who are Dying and Their Carers: a Scoping Review of Studies that Assess Person-Centered Outcomes. Front. Public Health, 11, 1180571. https://doi:10.3389/fpubh.2023.118057

Preston, G., Rampes, S., Bayly, J. et al. (2023). Using Olunteers to Improve Access to Community Rehabilitation in Palliative Care: the St Christopher’s Living Well at Home Team. Frontiers in Rehabilitation Sciences, 4. https://doi.org/10.3389/fresc.2023.1229442

Radbruch, L., Payne, S. (2009). White Paper on Standards and Norms for Hospice and Palliative Care in Europe. Рart 1. Palliative Medicine: The Research Journal of the EAPC, 16(6), 278-289. https://www.researchgate.net/publication/279547069_White_paper_on_standards_and_norms_for_hospice_and_palliative_care_in_Europe_Part_1

Rutkowski, N.A, Lebel, S., Richardson, K. et al. (2018). Little Help from my Friends: Social Support in Palliative Rehabilitation. Curr Oncol, 25(6), 358-365. https://doi:10.3747/co.25.4050

Shcherbakova, V.I., Kostina, V.V. (2022). Dosvid roboty z liudmy pokhyloho viku v umovakh viiskovoho stanu [Experience of Working with Elderly People in the Conditions of the Martial Law]. In: Vasylieva, M. P. (ed.) Suchasni realii ta perspektyvy sotsialnoho vykhovannia osobystosti v riznykh sotsialnykh instytutsiiakh [Current Realities and Prospects of Social Personality Education in Various Social Institutions]. Charkiv: KhNPU imeni H.S. Skovorody, 203-206. https://dspace.hnpu.edu.ua/items/65a430f6-f75e-4912-82c6-007ca03a9089 [in Ukrainian].

Smerechak, L.I. (2020). Art-terapiia v roboti fakhivtsiv sotsialnoi sfery [Art Therapy in the Work of Specialists in the Social Sphere]. Visnyk Cherkaskoho natsionalnoho universytetu imeni Bohdana Khmelnytskoho [Bulletin of the Cherkasy Bohdan Khmelnytsky National University], 1, 218-223.
https://:doi:10.31651/2524-2660-2020-1-218-223 [in Ukrainian].

Uchino, B.N. (2004). Social Support and Physical Health: Understanding the Health Consequences of Relationships. New Haven: Yale University Press. Uchino. https://doi.org/10.12987/yale/9780300102185.001.0001

Verkhovna Rada of Ukraine (2020, 4 June). Nakaz Pro udoskonalennia orhanizatsii nadannia paliatyvnoi dopomohy v Ukraini (Ministerstvo okhorony zdorovya Ukrayiny) [Order on Improving the Organization of Providing Palliative Care in Ukraine (Ministry of Health Protection of Ukraine)]. https://zakon.rada.gov.ua/laws/show/z0609-20#n7 [in Ukrainian].

Verkhovna Rada of Ukraine (2014, 23 May). Nakaz Pro zatverdzhennia Poriadku vzaiemodii subiektiv pry nadanni sotsialnoi posluhy paliatyvnoho dohliadu vdoma nevylikovno khvorym (Ministerstvo okhorony zdorovya Ukrayiny) [Order On the Approval of the Procedure for the Interaction of Subjects in the Provision of Social Services of Palliative Care at Home for Terminally Ill Patients (Ministry of Health Protection of Ukraine)]. https://zakon.rada.gov.ua/laws/show/z0625-14#n14 [in Ukrainian].

Verkhovna Rada of Ukraine (2023, 6 April). Nakaz Pro zatverdzhennia Standartiv medychnoi dopomohy Khronichnyi bolovyi syndrom u doroslykh ta ditei [Order On the Approval of the Standards of Medical Care Chronic Pain Syndrome in Adults and Children, 2023]. https://zakon.rada.gov.ua/rada/show/v0643282-23#Text [in Ukrainian].

World Health Organization (1946). Constitution Of The World Health Organization. Basic Documents: Forty-Ninth Edition. https://apps.who.int/gb/bd/pdf_files/BD_49th-en.pdf

Komentáře jsou uzavřeny.